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Starr Center Publications

Infants and Young Children with Disabilities

  • Warfield, M.E., & Gulley, S. (2006).
    Unmet need and problems accessing specialty medical and related services among children with special health care needs. Maternal and Child Health Journal, 10, 201-216.
  • Warfield, M.E. (2005).
    Family and work predictors of parenting role stress among two-earner families of children with disabilities. Infant and Child Development, 14, 155-176.
  • Hauser-Cram, P., Warfield, M.E., Shonkoff, J.P., & Krauss, M.W. (2001).
    Children with disabilities: A longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66, (3, Serial No.266).
  • Warfield, M.E. (2001).
    Employment, parenting, and well-being among mothers of children with disabilities. Mental Retardation, 39, 297-309.
  • Krauss, M.W. (2000).
    Family assessment within early intervention programs. In J.P. Shonkoff & S. Meisels (Eds.), Handbook of early childhood programs, 2nd Edition. New York: Cambridge University Press.
  • Timmermans, S. & Leiter, V. (2000).
    The Redemption of Thalidomide: Standardizing the Risk of Birth Defects. Social Studies of Science 30:41-71.
  • Warfield, M.E., Hauser-Cram, P., Krauss, M.W., Shonkoff, J.P.& Upshur, C.C. (2000).
    The effect of early intervention services on maternal well-being. Journal of Early Education and Development, 11, 499-518.
  • Bronson, M.B., Hauser-Cram, P., & Warfield, M.E. (1997).
    Classrooms matter: Relations between the classroom environment and the social and mastery behavior of five-year-old children with disabilities. Journal of Applied Developmental Psychology, 18, 331-348.
  • Hauser-Cram, P., Krauss, M.W., Warfield, M.E., & Steele, A. (1997).
    The congruence and predictive power of mothers' and teachers' ratings of mastery motivation in children with mental retardation. Mental Retardation, 35, 355-363.
  • Krauss, M.W. (1997).
    Two generations of family research in early intervention. In M.J. Guralnick (Ed.), The effectiveness of early intervention. Baltimore, MD: Paul Brookes.
  • Warfield , M.E., & Hauser-Cram, P. (1996).
    Child care needs, arrangements, and satisfaction of mothers of children with developmental disabilities. Mental Retardation, 34, 294-302.
  • Bronson, M.B., Hauser-Cram, P., & Warfield, M.E. (1995).
    Classroom behaviors of preschool children with and without developmental disabilities. Journal of Applied Developmental Psychology, 16, 371-390.
  • Krauss, M.W., & Hauser-Cram, P. (1992).
    Policy and program developments for infants and toddlers with disabilities. In L. Rowitz (Ed.), Mental retardation in the Year 2000. New York: Springer-Verlag.
  • Shonkoff, J.P., Hauser-Cram, P., Krauss, M.W., & Upshur, C.C. (1992).
    Development of infants with disabilities and their families: Implications for theory and service delivery. Monograph of the Society for Research in Child Development, 57 (Serial No. 230).
  • Krauss, M.W., & Jacobs, F. (1990).
    Family assessment: Purposes and techniques.In S.J. Meisels and J. Shonkoff (Eds.), Handbook of early childhood intervention. New York: Cambridge University Press.
  • Krauss, M.W. (1990).
    New precedent in family policy: The individualized family service plan. Exceptional Children, 56, 388-395.
  • Erickson, M., & Upshur, C.C. (1989).
    Caretaking burden and social support: Comparison of mothers of infants with and without disabilities. American Journal on Mental Retardation, 94,250-258.
  • Hauser-Cram, P., Upshur, C., Krauss, M.W., & Shonkoff, J.P. (1988).
    Implications of PL 99-457 for early intervention services for infants and toddlers with disabilities. The Social Policy Report of the Society for Research in Child Development, 3, 1-15.
  • Shonkoff, J.P., Hauser-Cram, P., Krauss, M.W., & Upshur, C. (1988).
    A community of commitment: Parents, programs and the Early Intervention Collaborative Study. Zero to Three (Bulletin of the National Center for Clinical Infant Programs), 8, 1-7.
  • Shonkoff, J.P., Hauser-Cram, P., Krauss, M.W., & Upshur, C.C. (1988).
    Early intervention efficacy research: What have we learned and where do we go from here? Topics in Early Childhood Special Education, 8, 81-93.

The Impact of Caregiving on Families

  • Greenberg, J.S., Seltzer, M.M., Krauss, M.W., Chou, R.J. & Hong, J. (2004).
    The effect of quality of the relationship between mothers and adult children with disabilities: The mediating role of optimism. American Journal of Orthopsychiatry, 74(1), 14-25.
  • Magaña, S., Seltzer, M. M., & Krauss, M. W. (2004).
    The cultural context of caregiving: Differences in depression between Puerto Rican and non-Latina white mothers of adults with mental retardation. Mental Retardation 42(1), 1–11.
  • Orsmond, G.I., Seltzer, M.M., Krauss, M.W., & Hong, J. (2003).
    Behavior problems in adults with mental retardation and maternal well-being: Examination of the direction of effects. American Journal of Mental Retardation, 108(4), 257–271.
  • Hong, J., Seltzer, M.M., & Krauss, M.W. (2001).
    Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation. Family Relations, 50, 154-163.
  • Krauss, M.W. & Seltzer, M.M. (2001).
    Siblings with mental retardation. In J. Lerner , R. Lerner, & J. Finkelstein (Eds.), Adolescence in America: An Encyclopedia. Santa Barbara: ABC-CLIO.
  • Seltzer, M.M. & Krauss, M.W. (2001).
    Quality of life of adults with mental retardation/developmental disabilities who live with family. Mental Retardation and Developmental Disabilities Research Review, 7, 105-114.
  • Seltzer, M.M., Krauss, M.W., Orsmond, G.I., & Vestal, C. (2000).
    Families of adolescents and adults with autism: Uncharted territory. In L.M. Glidden (Ed.), International Review of Research on Mental Retardation, Vol. 23, San Diego: Academic Press.
  • Greenberg, J.S., Seltzer, M.M., Orsmond, G.I., & Krauss, M.W. (1999).
    Siblings of adults with mental illness or mental retardation: Current involvement and expectation of future caregiving. Psychiatric Services, 50, 1214-1219.
  • Hauser-Cram, P., Warfield, M.E., Shonkoff, J.P., Krauss, M.W., Upshur, C.C., & Sayer, A. (1999).
    Family influences on adaptive development in young children with Down syndrome. Child Development, 70, 979-989.
  • Seltzer, M.M. & Krauss, M.W. (1999).
    Families of adults with Down syndrome. In J.F. Miller, M. Leddy, & L.A. Leavitt (Eds.) Improving the communication of people with Down syndrome. Baltimore: Paul H. Brookes.
  • Warfield, M.E., Krauss, M.W., Hauser-Cram, P., Upshur, C.C., & Shonkoff, J.P. (1999).
    Adaptation during early childhood among mothers of children with disabilities. Journal of Developmental and Behavioral Pediatrics, 20, 9-16.
  • Gordon, R.M., Seltzer, M.M., & Krauss, M.W. (1997).
    The aftermath of parental death: Changes in the context and quality of life. In R.L. Schalock (Ed.), Quality of life: Its applications to persons with disabilities. Washington, DC: American Association on Mental Retardation.
  • Hauser-Cram, P., Warfield, M.E., & Krauss, M.W. (1997).
    An examination of parent support groups: A range of purposes, theories, and effects. In W.R. Freudenberg & T.I.K. Youn (Eds.), Research in social problems and public policy. Vol. 6. Greenwich, CT: JAI Press.
  • Krauss, M.W. & Seltzer, M.M. (1997).
    Life course perspectives in mental retardation research: The case of family caregiving. In J.A. Burack, R.M. Hodapp, & E. Zigler (Eds.) Handbook on Mental Retardation and Development. New York:Cambridge University Press.
  • Seltzer, M.M., Greenberg, J.S., Krauss, M.W., Gordon, R.M., & Judge, K. (1997).
    Siblings of adults with mental retardation or mental illness: Effects on lifestyle and on psychological well-being. Family Relations, 46, 395-406.
  • Krauss, M.W., Seltzer, M.M., Gordon, R., & Friedman, D.H. (1996).
    Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34, 83-93.
  • Freedman, R., Litchfield, L., & Warfield, M.E. (1995).
    Balancing work and family: Perspectives of parents of children with developmental disabilities. Families in Society: The Journal of Contemporary Human Services, 76, 507-514.
  • Krauss, M.W., & Seltzer, M.M. (1995).
    Long-term caring: Family experiences over the life course. In L. Nadel & D. Rosenthal (Eds.), Down syndrome: Living and learning in the community. New York, NY: John Wiley.
  • Krauss, M.W. (1993).
    Child-related and parenting stress: Similarities and differences between mothers and fathers of children with disabilities. American Journal on Mental Retardation, 97, 393-404.
  • Seltzer, M.M., & Krauss, M.W. (1993).
    Adult sibling relationships of persons with mental retardation. In Z. Stoneman & P. Berman (Eds.), The effects of mental retardation, disability and illness on sibling relationships. Baltimore, MD: Paul H. Brookes.
  • Krauss, M.W., Seltzer, M.M., & Goodman, S. (1992).
    Social support networks of adults with retardation who live at home. American Journal on Mental Retardation, 96, 432-441.
  • Seltzer, M.M., Krauss, M.W., & Heller, T. (1991).
    Family caregiving over the life course. In M.P. Janicki & M.M. Seltzer (Eds.), Aging and developmental disabilities: Challenges for the 1990s. Washington, D.C.: American Association on Mental Retardation.

Contributions to Theory

  • Krauss, M.W. & Seltzer, M.M. (1994).
    Taking stock: Expected gains from a life-span perspective on mental retardation. In M.M. Seltzer, M.W. Krauss, & M.P. Janicki (Eds.), Life course perspectives on adulthood and old age. Washington, D.C.:The American Association on Mental Retardation.
  • Krauss, M.W. (1993).
    On the medicalization of family caregiving. Mental Retardation, 31, 78-80.
  • Hauser-Cram, P., & Krauss, M.W. (1991).
    Measuring change in children and families. Journal of Early Intervention, 15, 288-297.
  • Sciegaj, M., Dever, A., & Wade T. (1991).
    A Participant's Guidebook for Applying Ethical Theory to Public Health Practice. Atlanta: Division of Public Health, Georgia Department of Human Resources.
  • Krauss, M.W. (1990).
    In defense of common sense. American Journal on Mental Retardation, 95, 19-21.
  • Ramey, S.L., Krauss, M.W., & Simeonsson, R. (1989).
    Research on families: Current assessment and future opportunities. American Journal on Mental Retardation, 94, ii-vi.
  • Dever, A., Sciegaj, M., Wade, T., & Loftin, T. (1988).
    Creation of a social vulnerability index for justice in health planning. Family and Community Health, 10, 23-30.
  • Krauss, M.W. (1988).
    Measures of stress and coping in families. In H. Weiss and F. Jacobs (Eds.), Evaluating family programs. Hawthorne, NY: Aldine Press.
  • Sciegaj, M., Dever, A., Wade, T., & Alley, J. (1987).
    A framework for applying ethical theory to public health practice. Family and Community Health, 9, 15-23.

Evaluation

  • Hauser-Cram, P., Warfield, M.E., Shonkoff, J.P., Krauss, M.W., Sayer, A., & Upshur, C.C. (2005).
    A developmental-contextual perspective. In H.B. Weiss, H. Kreider, M.E. Lopez, & C.M. Chatman (Eds.), Preparing educators to involve families: From theory to practice. Thousand Oaks, CA: Sage Publications.
  • Warfield, M.E. & Hauser-Cram, P. (2005).
    Monitoring and evaluation in early intervention programs. In M.J. Guralnick (Ed.), The developmental systems approach to early intervention. Baltimore: Paul H. Brookes.
  • Hauser-Cram, P., Warfield, M.E., Upshur, C.C., & Weisner, T.S. (2000).
    An expanded view of program evaluation in early childhood intervention. In J.P. Shonkoff and S.J. Meisels (Eds.), Handbook of early childhood intervention, 2nd edition. New York: Cambridge University Press.
  • Warfield, M.E. (1995).
    The cost-effectiveness of home visiting versus group services in early intervention. Journal of Early Intervention, 19, 108-126.
  • Warfield, M.E. (1994).
    A cost-effectiveness analysis of early intervention services in Massachusetts: Implications for policy. Educational Evaluation and Policy Analysis, 16,87-99.
  • Erickson, M. (1992).
    An analysis of early intervention expenditures in Massachusetts. American Journal on Mental Retardation, 96, 617-629.